Working together, making a difference.
Sarcoma Patient Advocacy Global Network (SPAGN) is the global network of national Sarcoma Patient Advocacy Organizations. Today, more than 60 member groups from 5 continents gather under the umbrella of SPAGN, providing a common, international, and influential patient voice for sarcoma patients around the globe. SPAGN is working to improve the treatment and care of sarcoma patients through information and support, and by increasing the visibility of sarcoma with policymakers and the public.
Our Vision
Our vision is that one day sarcomas will be preventable or curable. Until then, patients, experts, and other stakeholders are working together globally to
• drive sarcoma research
• improve early and correct diagnosis
• secure timely access to interdisciplinary expert care and
• provide patient-oriented information and support
It is our aim to make sure that more sarcoma patients live longer with a better quality of life.
Our Mission
SPAGN is the global network of Sarcoma Patient Advocacy Organizations that strengthen one another and provide a common, international, and influential patient voice. Our joy and passion in working across borders drive us to achieve necessary change together with our collaborators.
Contact
Web: www.sarcoma-patients.org
Email: info@sarcoma-patients.org
Twitter/X: @sarcomapatients
Facebook: @sarcomapatients
Instagram: @sarcoma_patients
LinkedIn: https://www.linkedin.com/company/sarcoma-patients/
Youtube: Sarcoma Patient Advocacy Global Network (SPAGN)