Patient Advocate
Chordoma Foundation, Germany
Irene Usha Badura
Contact Information
Address: Egginger Weg 11, 89077 Ulm, Germany
Phone: +49 15566 961304
Email: deutschland@chordomafoundation.org
Professional Summary
Experienced Patient Representative with over 3 years of expertise in advocating for patient needs, resolving complaints, and enhancing patient satisfaction. Committed to fostering a supportive environment for patients and their families.
Education:
Master of science, Clinical Gerontopsychology
Technische Universität , Chemnitz, Germany
Bachelor of Science, Psychology
Universität Ulm, Ulm, Germany
Professional Experience:
Patient Representative for Chordoma Patients in Germany
Chordoma Foundation, Durham, NC, USA
September 2020 – Present
Facilitate patient and family meetings to discuss care plans, treatment options, and address any issues related to patient experience.
Manage an online support group for patients and caregivers.
Licensed Systemic Therapist (DGSF)
Freelancer, Ulm, Germany
September 2022 – Present
Provide systemic therapy to individuals, couples, and families, focusing on relational patterns and family dynamics.
Awards and Honors:
Uncommon Action Award, Chordoma Foundation, 2022
"For exceptional dedication to improving the lives of patients affected by chordoma."
Service and Outreach:
Community Advisory Board Member, Chordoma Foundation, 2023 – Present
Contributed to improving patient support services.
Teaching Experience:
“Selbsthilfegruppe”
Universität Ulm, Ulm, Germany
July 2024
- Lecturer for medical students on the topic of self-help groups.
Professional Memberships:
- Deutsche Sarkom Stiftung, member, 2023 - present
- Deutsche Gesellschaft für systemische Therapie, member, 2020 - present
